Research type:
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Primary Research (e.g. trial) |
Title (lead author) etc:
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Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice (Kai) 106 pages, Volume 13, number 57 |
DOI
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10.3310/hta13570 |
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Headline: |
Study found that communication of newborn carrier results varies considerably across England, and parents'; needs for timely and appropriate information may not be met consistently or adequately |
This report should be referenced as follows: |
Kai J, Ulph F, Cullinan T, Qureshi N. Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice. Health Technol Assess
2009;13(57).
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Project ref: |
04/10/01 |
Original project title: |
Communication of carrier status information following newborn screening: descriptive study of current practice, methods and experience |
Chief Investigator: |
Professor Joe Kai, Professor of Primary Care,
CLAHRC-NDL, University of Nottingham
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Start Date: |
May 2006 |
Date of publication in HTA journal series |
December 2009
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Cost: |
£186,638 |
MeSH* index primary terms: |
NEONATAL-SCREENING Q-methods; ANEMIA-SICKLE-CELL Q-diagnosis; CYSTIC-FIBROSIS Q-diagnosis (* = Medical Subject Headings) |
MeSH* index secondary terms: |
HUMANS; INFANT-NEWBORN (* = Medical Subject Headings) |
NRR* number, if applicable: |
N0484179922 (*National Research Register) The National Research Register was a public database of ongoing and recently completed research projects funded by, or of interest to, the United Kingdom's National Health Service (NHS). It is now an archive of projects from early 2000 to September 2007. Search the NRR archive. |
Project Protocol: |
Project protocol (pdf format, 90 kbytes)
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Printed copies of this title despatched:
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91 (Figures relate to the previous calendar month) |
URL of this page: |
http://www.hta.ac.uk/1510 |
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